Dystonia and Movement Disorders Biorepository - Clinical Trial

What is the Purpose of this Study?

We are doing this study to look at components of the blood to see if there are features that distinguish people with dystonia from people without dystonia. Identifying "biomarkers" in the blood that are associated with dystonia is greatly needed to help more accurately diagnosis dystonia and to identify subsets of dystonias that may have shared mechanisms. Being able to group individuals by underlying mechanisms can guide people with dystonia to the most appropriate future treatments that act specifically to correct one cause or another.

What is the Condition Being Studied?

Dystonia

Who Can Participate in the Study?

Any adult 18 or older who has been diagnosed with dystonia.

For more information, contact the study team at tiffany.k.tran@duke.edu.

What is Involved?

If you choose to join this study, it will involve 1 visit that lasts about one and a half hours. During this visit, you will:

  • Have a blood draw
  • Fill out a survey about your experiences with dystonia

Link to study website: https://neurology.duke.edu/divisions/parkinsons-disease-and-movement-disorders/clinical-trials

Study Details

Full Title
Dystonia and Movement Disorders Biorepository
Principal Investigator
Protocol Number
IRB: PRO00109206
Enrollment Status
Open for Enrollment